Yesterday I actually slept in! I only had an afternoon appointment so I let J Bird go work out at 6 am without me. When I heard him come in and start to juice, I immediately sprung out of bed and thought, "I have to take my meds!!"
I ate breakfast and waited about 30 mins to take the Lupron shot and waited another 30 mins to take the Dex to try to avoid nausea. The shot was very easy, I didn't even feel it go in. Before I took the Dex I started to feel nauseous and short of breath. I googled the symptoms and while nausea is typical, shortness of breath can be an allergic reaction. I emailed my nurse and she said that if it continues I should call the office.
The Dex didn't seem to do anything else to add to the side effects, except that while we were at The Avengers movie my legs started to hurt so bad! It felt like growing pains. When I got home I jumped in a hot bath for a few mins and took some Tylenol. It seemed to help alleviate the pain in my legs.
Right now I just ate breakfast and I'm killing some time before taking my medicines. I hope yesterday was just an adjustment period. My parents drove all the way down from PA yesterday and we plan on exploring a flea market, farmers market, hitting up the pool (It's a high of 96 today!) and making some good food :)
Gave birth to girl/girl twins after a successful IVF treatment. Diagnosis of Endometriosis. Tried for 2.5 years until we found something that worked- we feel so blessed!
Showing posts with label Lupron. Show all posts
Showing posts with label Lupron. Show all posts
Saturday, May 26, 2012
Tuesday, December 20, 2011
Endo- diet
I have taken on the Endo diet since November 1st. No dairy, no soy, no gluten, no red meat, only organic meat, lots of fruits, veggies, nuts and seeds. I've gotten most of my information for the diet from this book: Endometriosis: A key to healing through Nutrition.
Of course, I have had my cheat days. Sometimes we go to Subway and I cannot resist getting a flatbread sandwich with pepper jack cheese and chicken. And the holidays are pretty tough, as I make no special requests for food items. I am fine to eat some of these items, but I definitely notice when I eat gluten. I get a sharp pain in my lower abdomen.
I wanted to start this blog for a few reasons; 1) There are so many other women in the same exact position as me and I find relief in reading their blogs as well and 2) I can use this as a source to vent. There is nothing more frustrating than trying to explain your feelings to friends and family and being told "It will happen!" "Stop stressing". I know they are trying to be reassuring, but it just doesn't help! I'd rather someone just listen and say "Yeah, that does suck".
I am hoping to use this blog mainly to vent, relate to others and post some new endo recipes.
Have a wonderful day!
Of course, I have had my cheat days. Sometimes we go to Subway and I cannot resist getting a flatbread sandwich with pepper jack cheese and chicken. And the holidays are pretty tough, as I make no special requests for food items. I am fine to eat some of these items, but I definitely notice when I eat gluten. I get a sharp pain in my lower abdomen.
I wanted to start this blog for a few reasons; 1) There are so many other women in the same exact position as me and I find relief in reading their blogs as well and 2) I can use this as a source to vent. There is nothing more frustrating than trying to explain your feelings to friends and family and being told "It will happen!" "Stop stressing". I know they are trying to be reassuring, but it just doesn't help! I'd rather someone just listen and say "Yeah, that does suck".
I am hoping to use this blog mainly to vent, relate to others and post some new endo recipes.
Have a wonderful day!
Sunday, November 20, 2011
The lap
I had the laparoscopy about a month ago. I was really nervous about the recovery. I read everything from people going to work the next day to being out of commission for a month.
My mom flew in for the surgery and we were able to spend the day before eating bad for us Southern foods and shopping. It was very relaxing. I was not able to eat on the morning of my surgery so it's a good thing it was scheduled for 8 am. Before they gave me the anesthesia they gave me some really good drugs and it was time to say goodnight to my husband and mom. The surgery went quickly and I was home by 10am. I was a little sore, but not too bad, I'm sure I was on a lot of pain killers at that time. The rest of the day was spent napping on and off and the only real pain I had was gas pain under my diaphram and in my right shoulder. I went to bed at 10 pm and woke at 3am. I wasn't in pain, I think that I had too much sleep the day before.
The next two days I did not have any gas pains, was light headed upon standing up and experienced discomfort when trying to get off the couch. I believe that I got my period that day because I was bleeding quite heavily. I did not take any pain medications, was a little nauseous at night, but was able to sleep about 11 hours. I was able to drive my self by day 3 and went back to work day 5. I had to wear comfortable pants and make sure that I did not pick up any children, but overall it was only a minor discomfort.
After my surgery I kept asking my husband and mom how it went. They would tell me good...but then there would be a silence. Finally after much instance they told me. The doctor had found endo on my uterus, bladder, ovaries and rectum. It is considered stage IV when it reaches the digestive system and since the rectum is a sensitive area, the doctor was unable to remove it there. When the doctor spoke with J Bird after surgery he had seemed unsure of what the next step would be.
On Monday I call the doctor so that he can speak to me directly about what needed to happen next. He considered the endo to be extensive and thought that I should take Lupron to decrease the endo on my rectum....ok. So what's Lupron?? Oh, only a drug that would send my body into a "menopause-like" state for 6 months. The news sent me reeling. Before surgery I was told that I could go on Clomid the next month and start trying for a baby. Now I had to wait 7 months to start trying again?! I bawled in the parking lot of Marshalls until J Bird came over from work. He reassured me that in the long scheme, 7 months was nothing. We could check off everything we had left on our newlywed bucket list.
So, I resigned myself to the fact that I would be experiencing hot flashes and mood swings for the next 6 months of my 29 year old life. That is, until I started my internet research. What I found on the world wide web was not positive reviews of Lupron, in fact, there were many lawsuits against the makers of Lupron because of the damaging side effects. I understand that some people only write negative reviews and those who have positive experiences may never write on the internet. However, it wasn't a chance I was willing to take.
One option I thought sounded reasonable was the endo diet. In short it's a gluten-free, soy-free and dairy-free diet. So, all I have to do is not eat these foods and my endo pain will decrease? Sounds much better to me than the alternative of losing bone density for the entirety of my life and being a bitch on wheels for 6 months. So began my endo diet. Which I quickly renamed my healthstyle. Every time I told someone that I was on a "diet" they would say, "You don't need to lose weight!" and I would have to explain what I meant by diet and the purpose of my particular way of eating. The way I started describing it, to avoid confusion, became my healthstyle. My new way of eating, not to lose weight, but to lose any of that icky endo that is still lurking around.
My mom flew in for the surgery and we were able to spend the day before eating bad for us Southern foods and shopping. It was very relaxing. I was not able to eat on the morning of my surgery so it's a good thing it was scheduled for 8 am. Before they gave me the anesthesia they gave me some really good drugs and it was time to say goodnight to my husband and mom. The surgery went quickly and I was home by 10am. I was a little sore, but not too bad, I'm sure I was on a lot of pain killers at that time. The rest of the day was spent napping on and off and the only real pain I had was gas pain under my diaphram and in my right shoulder. I went to bed at 10 pm and woke at 3am. I wasn't in pain, I think that I had too much sleep the day before.
The next two days I did not have any gas pains, was light headed upon standing up and experienced discomfort when trying to get off the couch. I believe that I got my period that day because I was bleeding quite heavily. I did not take any pain medications, was a little nauseous at night, but was able to sleep about 11 hours. I was able to drive my self by day 3 and went back to work day 5. I had to wear comfortable pants and make sure that I did not pick up any children, but overall it was only a minor discomfort.
After my surgery I kept asking my husband and mom how it went. They would tell me good...but then there would be a silence. Finally after much instance they told me. The doctor had found endo on my uterus, bladder, ovaries and rectum. It is considered stage IV when it reaches the digestive system and since the rectum is a sensitive area, the doctor was unable to remove it there. When the doctor spoke with J Bird after surgery he had seemed unsure of what the next step would be.
On Monday I call the doctor so that he can speak to me directly about what needed to happen next. He considered the endo to be extensive and thought that I should take Lupron to decrease the endo on my rectum....ok. So what's Lupron?? Oh, only a drug that would send my body into a "menopause-like" state for 6 months. The news sent me reeling. Before surgery I was told that I could go on Clomid the next month and start trying for a baby. Now I had to wait 7 months to start trying again?! I bawled in the parking lot of Marshalls until J Bird came over from work. He reassured me that in the long scheme, 7 months was nothing. We could check off everything we had left on our newlywed bucket list.
So, I resigned myself to the fact that I would be experiencing hot flashes and mood swings for the next 6 months of my 29 year old life. That is, until I started my internet research. What I found on the world wide web was not positive reviews of Lupron, in fact, there were many lawsuits against the makers of Lupron because of the damaging side effects. I understand that some people only write negative reviews and those who have positive experiences may never write on the internet. However, it wasn't a chance I was willing to take.
One option I thought sounded reasonable was the endo diet. In short it's a gluten-free, soy-free and dairy-free diet. So, all I have to do is not eat these foods and my endo pain will decrease? Sounds much better to me than the alternative of losing bone density for the entirety of my life and being a bitch on wheels for 6 months. So began my endo diet. Which I quickly renamed my healthstyle. Every time I told someone that I was on a "diet" they would say, "You don't need to lose weight!" and I would have to explain what I meant by diet and the purpose of my particular way of eating. The way I started describing it, to avoid confusion, became my healthstyle. My new way of eating, not to lose weight, but to lose any of that icky endo that is still lurking around.
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